Last week, I was talking to a fellow mm-er on the phone and she was telling me she was feeling depressed since re-started on med and DEX! Has since stopped dex as it is making her miserable - anxiety and sleeplessness. Don't we all know. But all that happening with news that two from our mm support group have passed on! Sad. One of them we met often and talked. The last time we saw him, he was cheerful and recounted his battle with an episode of severe infection of "flesh-eating" bacteria which devoured a large part of his thigh. We thought he recovered well but probably the underlying myeloma has weakened his immune system badly. Just did not expect it to be so sudden. It is seeing them two months ago and now they are gone! So the friends we meet at the waiting area, we talk and share our lives and moments, treasure the memories, who knows if we will meet again at our next medical appointment.
Monday, 29 September 2014
Friday, 19 September 2014
Short visit - Stable
Just back from review with Dr C and the report is good, m-band is at 1.6g/L and the rest of full blood count are normal and within range. The doctor is happy that pomalyst at 2mg and a low weekly dex 12mg is keeping myeloma stable. I do not have significant side effects except blurry vision for which I am being monitored by eye doctor.
The 4 hours at the hospital today was pleasant as we met with fellow myeloma friends and chatted about how we are and who is on what drug protocol. One just 3 months after transplant and looking well, another just back from a cruise found m-band crept up but today's report showed a 10% reduction and he has been given the ok to motorbike up to Laos! Wow he is really adventurous and living life to the full... he is over 65, I think he said his grandson is 15! Another thing he shared was that he used to have low platelet around 50 (?) and someone suggested papaya leaves, he tried it au natural, tasted terrible, got it in capsule and takes one daily and now his platelet has gone up to over 100... Since I don't have low platelet, I didn't ask the details but thought I should just briefly share about it here.
My consult with Dr C was over quite quickly since there wasn't much to discuss. See him in 2 months' time.
The 4 hours at the hospital today was pleasant as we met with fellow myeloma friends and chatted about how we are and who is on what drug protocol. One just 3 months after transplant and looking well, another just back from a cruise found m-band crept up but today's report showed a 10% reduction and he has been given the ok to motorbike up to Laos! Wow he is really adventurous and living life to the full... he is over 65, I think he said his grandson is 15! Another thing he shared was that he used to have low platelet around 50 (?) and someone suggested papaya leaves, he tried it au natural, tasted terrible, got it in capsule and takes one daily and now his platelet has gone up to over 100... Since I don't have low platelet, I didn't ask the details but thought I should just briefly share about it here.
My consult with Dr C was over quite quickly since there wasn't much to discuss. See him in 2 months' time.
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